Dr. Baer is the director of the SICCA International Registry at Johns Hopkins University. Enrollment ended for this study October 5th 2012. A group of clinical and laboratory investigators from across the world were working together to study individuals with Sjögren’s syndrome and those who may have Sjögren’s syndrome. This collaborative group of scientists was known as the Sjögren’s International Collaborative Clinical Alliance (SICCA). The SICCA International Registry had three objectives. The first objective was to develop standardized diagnostic criteria for Sjögren’s syndrome (SS). This objective has been met. The second objective was to concurrently oversee the collection, processing and storage of clinical data and biospecimens (tears, saliva, and blood) from patients, their family members and controls. The third objective was to develop a data and biospecimen bank from which these resources could be provided to qualified investigators with projects focused on SS.
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