The National Sjögren’s Disease Registry is also known as SPARC, the Sjögren’s Partnership for Accelerating Research Collaboration. The first of its kind for Sjögren’s in the United States, it is a broad data platform that collects high-quality information from partner institutions. This collaboration allows researchers to access vast quantities of PHI-removed longitudinal data. It enables deeper analysis of presenting clinical features, evaluation of patient outcomes, and assessment of responses to treatment. Our goal is to expand this knowledge to an ever-growing number of sites to further our understanding of this complex disease.
Our branch of SPARC operates at the Johns Hopkins Jerome L. Greene Sjögren’s Center. To learn more about how this collaborative mission operates onsite, see the Johns Hopkins Sjögren’s Disease Registry.
